RT Journal Article
T1 Patient Perceptions of Needs and Expectations Regarding the Current Management of Myasthenia Gravis: A Biopsychosocial Study
A1 Campos Lucas, Francisco Javier
A1 Cortés Vicente, Elena
A1 Guerrero Sola, Antonio
A1 Álvarez Velasco, Rodrigo
A1 Pardo Gómez, Rocío
A1 Gómez Salgado, Juan
A1 Antón Rodríguez, Cristina
A1 Caballero Martínez, Fernando
AB Introduction: Information on the biopsychosocial needs and healthcare experiences of people living with myasthenia gravis (PwMG) in Spain remains limited. This study aimed to describe self-reported experiences and provide an overview of the condition's physical, psychological, and social impact.Methods: A multicenter cross-sectional epidemiological study was conducted through a nationwide online survey completed by a geographically stratified sample of PwMG across 13 of Spain's 17 Autonomous Communities.Results: A total of 208 valid responses were analyzed (mean age 58.8; SD 15.2 years; range 16-94; 55.8% men). Nearly half (49.5%) reported generalized myasthenia gravis (MG), and 36.4% held a disability certificate. Although most respondents perceived their health as good or very good (45.2%), pain or discomfort affected 51.5%, and half reported emotional symptoms such as anxiety or depression. The mean EQ-VAS score was 66.1 (SD 20.6), reflecting a reduced health-related quality of life (HRQoL) compared with the general population. While satisfaction with access to and quality of medical care was generally high, many patients expressed concerns about limited psychological support and insufficient social care for themselves and their caregivers. Conclusion: PwMG in Spain generally perceive their health positively, but significant unmet needs persist in psychological care and social protection. These findings underscore the importance of comprehensive patient-centered strategies that integrate medical, emotional, and social support to improve quality of life in MG.
PB Springer
SN 2193-8253
SN 2193-6536 (electrónico)
YR 2026
FD 2026
LK https://hdl.handle.net/10272/28176
UL https://hdl.handle.net/10272/28176
LA eng
NO Campos-Lucas, F. J., Cortés-Vicente, E., Guerrero-Sola, A., Álvarez-Velasco, R., Pardo-Gómez, R., Gómez-Salgado, J., Antón-Rodríguez, C., & Caballero-Martínez, F. (2026). Patient Perceptions of Needs and Expectations Regarding the Current Management of Myasthenia Gravis: A Biopsychosocial Study. Neurology and Therapy. https://doi.org/10.1007/s40120-026-00892-5
NO This study received a grant from the UFV-UCB Chair in Neurological Rare Diseases, founded by Universidad Francisco de Vitoria and UCB Pharma S.A. We thank the Chair for their support in developing this initiative. The UFV-UCB Chair in Neurological Rare Diseases funded the journal’s rapid service fee.
DS Repositorio Institucional de la Universidad de Huelva
RD 14 jul 2026